Plain language summary of the first findings from the International X-Linked Hypophosphatemia (XLH) Registry - Ariceta G; Beck?Nielsen SS; Boot AM; Brandi ML; Briot K; de Lucas Collantes C; Emma F; Giannini S; Haffner D; Keen R; Levtchenko E; Mäkitie O; et al. (Future Rare Diseases, 2025)